Dancing Eyes Podcast
My name is Frankie Caputo and I was born with congenital nystagmus. There were times in my life where I allowed my nystagmus to define me. It wasn’t until I turned around 20 years old that I realized how much more there is to life than my eye condition and the anxiety that it was causing me. I began a journey of self discovery focusing on my mind, body and soul. In the course of this discovery, The Dancing Eyes Podcast was born. I had never met anyone else who had nystagmus, and really began to question the statistics that say that 1 in 1000 people have the condition. The first episode of The Dancing Eyes Podcast aired on July 28, 2021. New episodes are released on the first and third Monday of each month. In each episode, my guests and I go deep on how living with nystagmus affects us on a day to day basis. We discuss topics such as doctors and surgeries, school and bullying, driving and tips for parents. If you have nystagmus or love someone who does, come be uplifted by our incredible guests telling their personal stories. Please hit the subscribe button and join our community. All links - https://linktr.ee/dancingeyespodcast
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Episodes
Thursday Mar 03, 2022
Thursday Mar 03, 2022
Pip currently lives in The Netherlands and she was born with congenital Nystagmus. In this episode Pip shares with me her experience of growing up with parents who were not very tolerant of her Nystagmus. We go into what roles parents play in their child's ability to adapt to their Nystagmus and share a few tips.
Tuesday Feb 22, 2022
Tuesday Feb 22, 2022
Brandon was born with Congenital Nystagmus and is currently living in California. In this episode we talk a lot about becoming more comfortable with our eyes and with who we are as a person. Brandon and I share some advice on overcoming bullying ,as well as talk about our hobbies, and a lot more!
Tuesday Feb 22, 2022
Tuesday Feb 22, 2022
Lauryn is a college student who was born with Congenital Nystagmus. In this episode she shares her tips for driving, school and a lot more. We also share some of our stories and experiences from growing up with Nystagmus.
Thursday Feb 03, 2022
Thursday Feb 03, 2022
Today Haley joins me to discuss her experience with Nystagmus. She was born with Congenital Nystagmus and is currently studying law in Philadelphia. Video format is also available on youtube.
Podcast Instagram- https://www.instagram.com/dancingeyespodcast/
Personal Instagram- https://www.instagram.com/frankiecaputo22/
Thanks for listening!
Tuesday Jan 25, 2022
Tuesday Jan 25, 2022
For episode 1 of The Dancing Podcast, Erik joins me to talk about his experience with Congenital Nystagmus. We talk about state troopers thinking he is high, wacky ideas that have been presented from doctors, and a lot more!