Dancing Eyes Podcast
My name is Frankie Caputo and I was born with congenital nystagmus. Throughout most of my childhood, I allowed my nystagmus to define me. High school was pretty brutal and I was constantly riddled with insecurities about my eyes. It wasn’t until I hit my early 20’s that I realized how much more there is to life than my eye condition. Around this time I began a journey of self discovery focusing on my mind, body and soul. I learned that by consciously changing the negative thoughts that I had about my nystagmus into positive and even humorous ones, that the condition was having less of a hold over me.
Before the Dancing Eyes Podcast, the only nystagmus related content I could find online were videos of doctors teaching about the condition or surgical procedures. But I didn’t care about that. I wanted to relate to people who live with nystagmus. I wanted to know that even with nystagmus, it was possible to live a rich and fulfilling life. In my search for community and understanding, the Dancing Eyes Podcast was born.
On the Dancing Eyes Podcast, I have conversations with interesting from people all around the world who were born with nystagmus. I’ve interviewed students, doctors, parents, psychologists, musicians, designers, etc, all who were born with nystagmus!
Come join me on a journey of understanding and self discovery as we navigate our lives with nystagmus together!
All links - https://linktr.ee/dancingeyespodcast
Listen on:
Episodes
Mar 3, 2022
Mar 3, 2022
48 min
Pip currently lives in The Netherlands and she was born with congenital Nystagmus. In this episode Pip shares with me her experience of growing up with parents who were not very tolerant of her Nystagmus. We go into what roles parents play in their child's ability to adapt to their Nystagmus and share a few tips.
Feb 22, 2022
Feb 22, 2022
1 hr 11 min
Brandon was born with Congenital Nystagmus and is currently living in California. In this episode we talk a lot about becoming more comfortable with our eyes and with who we are as a person. Brandon and I share some advice on overcoming bullying ,as well as talk about our hobbies, and a lot more!
Feb 22, 2022
Feb 22, 2022
56 min
Lauryn is a college student who was born with Congenital Nystagmus. In this episode she shares her tips for driving, school and a lot more. We also share some of our stories and experiences from growing up with Nystagmus.
Feb 3, 2022
Feb 3, 2022
41 min
Today Haley joins me to discuss her experience with Nystagmus. She was born with Congenital Nystagmus and is currently studying law in Philadelphia. Video format is also available on youtube.
Podcast Instagram- https://www.instagram.com/dancingeyespodcast/
Personal Instagram- https://www.instagram.com/frankiecaputo22/
Thanks for listening!
Jan 25, 2022
Jan 25, 2022
46 min
For episode 1 of The Dancing Podcast, Erik joins me to talk about his experience with Congenital Nystagmus. We talk about state troopers thinking he is high, wacky ideas that have been presented from doctors, and a lot more!