Dancing Eyes Podcast
My name is Frankie Caputo and I was born with congenital nystagmus. There were times in my life where I allowed my nystagmus to define me. It wasn’t until I turned around 20 years old that I realized how much more there is to life than my eye condition and the anxiety that it was causing me. I began a journey of self discovery focusing on my mind, body and soul. In the course of this discovery, The Dancing Eyes Podcast was born. I had never met anyone else who had nystagmus, and really began to question the statistics that say that 1 in 1000 people have the condition. The first episode of The Dancing Eyes Podcast aired on July 28, 2021. New episodes are released on the first and third Monday of each month. In each episode, my guests and I go deep on how living with nystagmus affects us on a day to day basis. We discuss topics such as doctors and surgeries, school and bullying, driving and tips for parents. If you have nystagmus or love someone who does, come be uplifted by our incredible guests telling their personal stories. Please hit the subscribe button and join our community. All links - https://linktr.ee/dancingeyespodcast
Listen on:
Episodes
Monday Jun 06, 2022
Monday Jun 06, 2022
In episode 15 of The Dancing Eyes Podcast, Sam joins me to have a laid back conversation about a wide variety of things including our eyes, music preferences, and elephants that can paint.
Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research.
Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
Personal Instagram: https://www.instagram.com/frankiecaputo22/
All Links https://linktr.ee/dancingeyespodcast
Email: frankiecaputo@gmail.com
NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Monday May 16, 2022
Monday May 16, 2022
In episode 14 of The Dancing Eyes Podcast, I have 6 parents joining me to talk about their experience raising children with Nystagmus.
Greg, Michele, Domenica, Tonya, Jen and Shari (my mom) share stories and tips about parenting a child with Nystagmus.
Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
Personal Instagram: https://www.instagram.com/frankiecaputo22/
All Links https://linktr.ee/dancingeyespodcast
Email: frankiecaputo@gmail.com
NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Monday May 02, 2022
Monday May 02, 2022
Alessio talks to me about his experience living with Nystagmus and Cerebral Palsy. We discuss his experience playing on multiple soccer teams, his 3d printed designs, his recently completed half marathon, and a lot more!
Alessio's Instagram: https://www.instagram.com/the_disabled_designer/
Alessio's Half marathon footage: https://www.instagram.com/p/CaxQj9sot4cBhYmLaWKtOeGg37q-t5xFkm3rUo0/
Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
Personal Instagram: https://www.instagram.com/frankiecaputo22/
All Links https://linktr.ee/dancingeyespodcast
Email: frankiecaputo@gmail.com
NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH
Thank you for watching. I hope everyone enjoys!
Tuesday Apr 19, 2022
Tuesday Apr 19, 2022
Alyssa is a freshman in college and was born with congenital nystagmus.
She is currently in school for music education and she enjoys opera and musical theater.
Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
Personal Instagram: https://www.instagram.com/frankiecaputo22/
All Links https://linktr.ee/dancingeyespodcast
Email: frankiecaputo@gmail.com
NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Monday Apr 04, 2022
Monday Apr 04, 2022
Ellie is a senior in high school and was born with congenital nystagmus. In this episode we discuss some tips on living with nystagmus and we also discuss a controversial post in the American Nystagmus Network's facebook group from about a month ago. We discuss a lot more as well.
Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
Personal Instagram: https://www.instagram.com/frankiecaputo/
All Links https://linktr.ee/dancingeyespodcast
Email: frankiecaputo@gmail.com
NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for listening. I hope everyone enjoys!
Monday Mar 21, 2022
Monday Mar 21, 2022
In episode 10 of The Dancing Eyes Podcast, Alex joins me to talk about his experience living with Nystagmus. He is a freshman in high school and just competed in his first Deca competition. Timestamps for conversation topics are listed below. TIMESTAMPS 0:00 Introduction 01:05 Episode begins 01:35 Alex backstory 03:35 Involvement with American Nystagmus Association 04:35 Doctor stories/ playing sports 07:35 Head tilt/ zoom calls 09:45 Avoiding head tilt while having conversations or pictures/ looking for Nystagmus sources as a teenager 14:30 Creation of the podcast/ logo design 16:25 Do you consider Nystagmus to be a disability? 18:30 What other conditions do you have? 19:05 Alex’s experience with his first Deca competition/ involvement of Nystagmus in the competition 31:35 Bringing up the Nystagmus when meeting new people/ difficulties making friends/ school experiences 37:45 Obtaining a driver's license 38:40 I demonstrate the eye exercises that I have been doing 42:30 Back to the driving talks/ technology and Nystagmus 48:15 504 plan/ school accommodations 50:45 Alex’s Nystagmus conference experience/ public speaking 58:20 Nystagmus in Alex’s family 59:55 My experience with procedures on my eyes (Kestenbaum and lasik) Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. Hope you guys enjoy :)
Tuesday Mar 08, 2022
Tuesday Mar 08, 2022
This has to be one of my favorite conversations so far in my journey of the Dancing Eyes Podcast. John Paul was born with Congenital Nystagmus and is currently an audio engineer. We discuss his profession as well as some philosophy. Our conversation for this episode may have been a little different from the usual, but I enjoyed it very much and I hope you guys do too!
Tuesday Mar 08, 2022
Tuesday Mar 08, 2022
Talene joins me today to discuss a lot of topics that I find interesting. We talk about how meditating affects the movement of her eyes. She also shares her experience with acupuncture for her Nystagmus and a lot more!
Tuesday Mar 08, 2022
Tuesday Mar 08, 2022
Mitchell is a filmmaker from Scotland who was born with Congenital Nystagmus. In this episode we talk about how Nystagmus affects his ability to write and star in his own movies. We also talk about how Nystagmus affected his childhood and a lot more! Here is a link to his most recent film. https://www.youtube.com/watch?v=5rorfGDx5p4&t=15s
Thursday Mar 03, 2022
Thursday Mar 03, 2022
Chloe is a high school student who was born with Congenital Nystagmus. In the 6th episode of the Dancing Eyes Podcast she shares with me how the condition has affected her life. We talk about struggling to look people in the eyes, her high school experience, and I may have spoken about Shrek too much.
Your Title
This is the description area. You can write an introduction or add anything you want to tell your audience. This can help potential listeners better understand and become interested in your podcast. Think about what will motivate them to hit the play button. What is your podcast about? What makes it unique? This is your chance to introduce your podcast and grab their attention.